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| .:: PARTICIPATION AND COURSE ::. |
For taking part in the registery of classical HUS please contact us.
Within the HUS-Net Study of atypical hemolytic uremic syndrome we perform genetic testing on disease-causing genes, screening and follow-up for complement factor H antibodies and a measurement of the terminal complement complex (TCC). Please notice, that the shipment of the patient's bloodsamples differs, some must be send on dry ice.
Inclusion criteria are (at least one must be fullfilled):
- Diarrhae negative, EHEC negative HUS
- Recurrent HUS
- Familial HUS
- HUS/TTP with Complement disorders
After giving informed consent (patient or person of custodial care), please complete the HUS-Net-Questionnaire (acute phase, follow-up after 1 year, 2 years, 5 years and 10 years and transplantation). Furthermore you can send us your medical reports. After our analysis of the questionnaire we will contact you for further investigation (complement system, genetics etc.). The analysis performed within this study can be offered free of charge.
The results will be returned to you immediately.
For further questions don't hesitate to contact us.
You find all documents (questionnaires, shipment of blood samples, informed consent) under Download.
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